BigFred

So are you waiting with baited breath…
The oncologist appointment on Wednesday was just as I expected, not much new to say. The tumor has not changed in size. The fluid on the brain has decreased however so that’s always good news. So…the doctor has decided to give Frederick a break for a month on the chemo. This will give us a chance to see if the chemo is helping to keep the tumor from growing or causing any of the other physical problems. As usual when Frederick saw the doctor he brightened right up. I on the other hand had a scowl on my face and started in asking questions of the doctor. Poor guy. We were one of the last of his patients that day and he was visibly tired, but I really felt helpless. At one point he even asked me to not answer any more questions just let Frederick answer. I told him I couldn’t because Frederick might not give the right answer since he doesn’t always remember stuff. Never the less, they enjoyed their time together.

The day before, Frederick had gone to see his new general practitioner. She gave him a physical and we found out that Frederick’s blood pressure was up and his cholesterol was up. So we got some more new medicines added to the mix.

After two days of doctors appointments, we had 3 new medicines that Frederick had to take. One was an antibiotic because Frederick had a little congestion in his chest. The one good thing last week was that Frederick’s INR (blood coagulation rate), was perfect (if there is such a thing). They want him to be between 2.0 and 3.0 and he was at 2.5 so that was great. Unfortunately since he added some new meds we go back to having the INR checked weekly.

Otherwise, Frederick is doing okay. He’s rigged up some music equipment in the living room and he’s been playing his guitar and making music. He’s played more in the past week than he has since he’s been sick. He’s written some new music and now he’s bugging me nicely to get some lyrics written. We’re still tracking for doing special music at our church in May. Yahoo! As soon as I figure out how to add music to this blog, I’ll give you some music samples.

Please pray for us in regard to sleeping. Frederick has gotten back into a pattern of not sleeping at night so that means I don’t sleep at night. Then he sleeps during the day. I can’t sleep in the light even if I had a chance, so I’m sometimes a walking zombie. I must admit it also makes me grumpy.

Sunday at church our worship team sang a new song by Johnathan Butler, Come and Let Us Sing. This song was a real encouragment to me. Basically I feel like it was telling me to keep my focus on him (God), not my circumstances. He’s worthy to be praised no matter what we’re going through. Also someone shared how she had been praying for some friends and had not see any results. I don’t know what period of time passed, but the Lord did move in the couples situation and the person sharing talked about how God was telling her that our responsibility is to pray. Even when we don’t see anything going on, because he (God) is always working. We don’t see the seed being nurtured underground, but we see the fruit and trees and etc., that blossom in due season. That’s my interpretation. And this crazy weather reminds me of a song that says “I’m working even in the rain, so hold on, I’m working even in the rain”.

So hold on my brothers and sisters, cause he’s working even in the rain!
Love ya’ll
Diana and Frederick

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